- ITV/Good Morning Britain
An American hospital has offered to ship an experimental drug to the UK to help treat terminally ill British baby Charlie Gard.
The New York Presbyterian Hospital and Columbia University Irving Medical Center offered their support after President Donald Trump tweeted about Gard’s plight earlier this week.
If we can help little #CharlieGard, as per our friends in the U.K. and the Pope, we would be delighted to do so.
— Donald J. Trump (@realDonaldTrump) July 3, 2017
The 10-month-old baby is due to be taken off life support after doctors decided to stop attempting to save him from mitochondrial depletion syndrome, a rare genetic disease which has left him in need of constant care.
His parents launched a legal challenge to disregard medical advice and take him to the US for an experimental treatment only available there.
But, after arguing in every possible court, their final appeal to the European Court of Human Rights ended in judges supporting the decision of officials at London’s Great Ormond Street Hospital to let Gard die.
Since then, Trump has offered support and Pope Francis said he was praying that Gard’s parents’ “wish to accompany and treat their child until the end isn’t neglected.”
In a statement cited widely in US media, the New York Presbyterian Hospital and Columbia University Irving Medical Center said they had agreed to admit Gard, “providing legal hurdles are cleared” and the experimental treatment is approved.
They added: “Alternatively, if approved by the Food and Drug Administration, we will arrange shipment of the experimental drug to Great Ormond Street Hospital and advise their medical staff on administering it if they are willing to do so.”
Great Ormond Street Hospital has said further treatment will not help, according to the BBC.
The fight for Gard’s future has been “absolute living hell”
— Charlie's fight (@Fight4Charlie) June 30, 2017
Connie Yates, Gard’s mother, said she is due to meet with Great Ormond Street on Friday morning. She said five doctors, including two in the UK, believe he can be treated.
Speaking to ITV’s “Good Morning Britain,” she added that the experience has been “absolute living hell.”
“You can’t even put it into words how horrible it is. He’s our own flesh and blood and we don’t have a say in his life,” she said. “We’re not bad parents, we’re there for him all the time, we’re completely devoted to him. He’s not in pain and suffering I promise you. I couldn’t sit there and watch him suffer.”